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PANDAS, PANS, Pediatric, Autoimmune, Neurological
Disorder, Streptococcus, Anxiety, OCD, Antibiotic

Read a few pages. - Enjoy!

In Limbo Over Lyme Disease

Author's Noteors Note

Approximately 300,000 people of all ages contract Lyme disease each year in the US. Whenever there is a bumper crop of acorns, there is an increased abundance of mice that feed on the acorns. Ticks feed on mice, which carry many diseases. Then, the ticks may feed on deer or rabbits and, eventually, on humans. It is expected that the following tick season, mostly during the summer months, will infect many more people with Lyme disease and other tick-borne co-infections. This is how the cycle of infecting humans occurs in the US.


There are two schools of thought with practice guidelines for Lyme disease. One comes from the Infectious Diseases Society of America (IDSA), supported by the Centers for Disease Control and Prevention (CDC), where a shorter course of treatment is typically recommended without regard for how long a person has    been sick. The other one comes from the International Lyme and Associated Diseases Society (ILADS), where a longer course of treatment may be recommended depending on how long a person has been sick and what their current symptoms are. The CDC requires a patient to have a minimum of five positive bands on their lab report to be diagnosed with Lyme disease. However, many Lyme-literate medical doctors (LLMDs)  do not recognize this minimum requirement and believe that if a patient has Lyme DNA in their blood,    then that patient is considered to have Lyme disease, regardless of the number of bands.


The ILADS website (see Resources) allows you to search for a LLMD by entering your address. ILADS will respond with several doctor choices, closest to where you live. It is highly recommended that one seeks out    a LLMD for proper diagnosis and treatment of Lyme disease and co-infections. They utilize specialty testing, such as IGeneX and Galaxy, to yield the most accurate results. The traditional Western Blot and ELISA testing may yield false-negative results about 50 percent of the time.

 

 

Since ticks are relatively small, they may be hard to see. Some are only the size of a poppy seed. Their bite is usually not felt by people, since many ticks release a topical anesthetic when they bite. But keep in mind that you can get a tick bite from being in your own backyard, wherever you may live.

size of ticks

 

It is very important to protect yourself from ticks. This includes staying out of the woods, staying on trails while hiking, tucking your pant legs into socks, tucking a long-sleeve shirt into pants, wearing closed toe shoes, using a tick repellant spray with DEET (use with caution) or wearing clothing treated or sprayed with permethrin, an insecticide that repels and kills ticks, when outdoors.

Wearing light colored clothing will make it easier to spot any ticks on you. My mom says you should shower or bathe after playing outside, as soon as possible or at least within two hours, and feel all around your skin for any possible ticks that may still be on you.

Ticks like to hide in dark areas like behind knees and ears, in the groin area, inside the belly button, between fingers and toes, and at the base of your hairline or in your scalp.

spray for ticks

 

 

In A Pickle Over PANDAS

Author's Noteors Note

PANDAS is an acronym for Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcus. This neurological disorder can initially affect children from the age of three to puberty, and sometimes beyond. More boys than girls become afflicted with this disorder at a ratio of approximately 2:1 to 3:1. Strep bacteria prompt dysfunctional antibodies to invade the basal ganglia of the brain, instead of fighting the strep itself. This results in a plethora of unusual and alarming symptoms. In addition to strep, bacteria such as mycoplasma and Lyme, and viruses fall under the new umbrella term, PANS, which is an acronym for Pediatric Acute-onset Neuropsychiatric Syndrome. Other disorders that may stem from PANDAS/PANS are Obsessive Compulsive Disorder (OCD), Tourette’s Syndrome (TS), Oppositional Defiant Disorder (ODD), Attention Deficit Hyperactivity Disorder (ADHD), and Common Variable Immune Deficiency (CVID). It is important to note that PANDAS/PANS have dramatic and acute onsets, which differentiates them from the disorders mentioned above. A delay in proper diagnosis and treatment can rob the child of their childhood. Quick intervention with the appropriate antibiotic for an appropriate course of treatment is paramount in halting this disorder.

 

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I woke up one morning and nothing felt right!

I was scared but I didn’t know why and couldn’t really explain it to my parents.

I felt worried and nervous.

Then, I started crying and couldn’t stop.

 

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I was eight and a half years old and I did not want to go to school!

I sat in my mom’s lap and stayed very close to her whenever she left the room because it felt like something bad was going to happen.

She held me close and sang lullabies and Christmas carols.

This made me feel a little better.

But, I knew something was still really wrong.

 

GLOSSARY

Antibiotic: a drug used to kill bacteria and prevent disease

Antibodies: proteins in the blood that react to foreign proteins, neutralizing and producing immunity against them

Anxiety: an overwhelming feeling of uncertainty or nervousness

Autoimmune: when the immune system attacks one’s own body

Bacteria: microorganisms that cause disease

Immune system: the body’s ‘army’ of blood cells that fight infection or resist disease

Intravenous Immune globulin: a procedure that boosts your immune system by giving you donor Immune globulin or antibodies

Lyme: a disease caused by the Lyme tic

Mycoplasma: a bacteria that causes walking pneumonia

Obsessive Compulsive Disorder: persistent intrusive thoughts and/or repetitive movements

PANDAS: Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcus

PANS: Pediatric Acute-onset Neuropsychiatric Syndrome

Plasma: liquid portion of blood that contains antibodies

Plasmapheresis: a procedure that removes plasma from blood, which contains antibodies, and replaces it with donor plasma or a substitute

Streptococcus: bacteria that usually infects the throat or other areas, also referred to as strep

Symptoms: signs of change on the body’s functions or appearance

Throat Culture: throat swab to determine presence of streptococcus

Tourette’s Syndrome: tic disorder

Virus: any variety of microscopic organisms that cause disease that cannot be treated with antibiotics

 

www.pandasnetwork.org

www.nepandasparents.com

www.midwestpandas.com

www.webpediatrics.com

www.strepmonster.com

www.nimh.nih.gov

 

*A portion of the proceeds from the sale of this book will go directly to

PANDAS/PANS research through pandasnetwork.org.